ELF Patient organisation programme
The European Lung Foundation (ELF) brings together patients and the public with respiratory professionals to positively influence lung health. ELF works all year round with a network of national and European patient organisations who take part in the ERS International Congress.
The aim of having patient organisations at Congress is to:
- present the patient perspective in scientific and educational sessions
- promote the role of patient organisations
- strengthen the European community of respiratory patient organisations
- encourage professionals to engage with patient organisations
- promote the wider participation of patients and patient organisations in healthcare worldwide.
Patient organisations from across Europe will be located in the World Village and involved in activities taking place at Congress. Meet and find out more about these organisations at the ELF and patient organisation stand and at their hot desks.
The World Village exhibition will be open from:
Saturday 9 to Tuesday 12 September from 08:00 – 17:00 and on Wednesday 13 September from 08:00 – 12:00, with an ELF staff member and patient organisation representatives on the ELF and patient organisation stand at all times.
ELF has put together a varied programme of open and invitation-only events, as well as ensuring patient participation throughout the Congress. See below for full details.
ELF Patient Organisation Networking Day (open to all patient organisations, registration required)
ELF will hold a patient organisation networking day in collaboration with the ERS International Congress. This year, the event will link with the ERS Primary Care Day and will look at two international models to transform healthcare and optimise the management of people with long-term respiratory disease. Patient organisations are invited to join healthcare professionals to learn about new ways to manage chronic lung conditions. Patient organisation representatives will then share a networking lunch with the primary care day attendees, followed by joint solution-focused workshops based on issues arising from the morning presentations and other key challenges for patient organisations.
The day offers a unique opportunity for patient organisations to meet with primary care professionals in order to share expertise and learning, and to facilitate collaboration between patient groups from across Europe.
The event held on Saturday, 9 September, 09:30 - 17.20, at the MiCo congress centre is free to attend. Registration is required. If you would like more information or are a patient organisation representative who would like to attend, please contact Jeanette Boyd.
You can see the provisional programme here.
The full list of ELF activities over Congress
Each year, ELF organises activities around Congress that:
- include patient testimonies, where patients/carers provide an insight into the day-to-day experience of living with a lung condition and related issues, and thoughts and recommendations for improved medical practice and support.
- address topics of interest to patients and patient organisations, for example on topics such as health-related quality of life, patient-reported outcome measures, and rehabilitation.
- provide an opportunity for members of the public in the host city to learn more about their lung health.
- relate to the ELF/ERS Healthy Lungs for Life themes of clean air, air quality, occupational health and smoking cessation.
Patient perspectives in scientific and educational sessions
Please note that Congress registration is required to access scientific and educational sessions. An additional fee is required to attend postgraduate courses and professional development workshops. More details on registration for courses and workshops can be found here.
|
Date |
Time |
Session title and location |
Session type |
Patient role |
| 09.09.2017 | 09:30-17:20 | Primary Care Day; Black (North) and Patient organisation networking day; Yellow (North) | Networking day | Patient organisation network; Patient speaker: Mikaela Odemyr (SE) |
| 09.09.2017 | 09:30-13:00 | Paediatric asthma; Space 1 + 2 (South) | Postgraduate course | Patient speaker: Lisa Mace (UK) |
| 09.09.2017 | 14:00-17:30 | Smoking cessation in patients with respiratory diseases; Turquoise 1 (North) | Postgraduate course | HLfL; Patient speaker: David Candlish (UK) |
| 09.09.2017 | 14:00-17:30 | Self-management in chronic respiratory diseases; Pink (South) | Postgraduate course | -- |
| 09.09.2017 | 14:00-17:30 | Sleep-disordered breathing: diagnosis and therapy; Space 3 + 4 (South) | Postgraduate course | Patient speaker: Piet-Heijn van Mechelen (NL) |
| 10.09.2017 | 08:30-10:30 | New developments in respiratory physiotherapy and pulmonary rehabilitation; Purple (North) | Symposium | Patient speaker: Jos Donkers (NL) |
| 10.09.2017 | 10:45-12:45 | Translating "evidence-based behaviour change" and "e-health" interventions into practice: what works in smoking cessation and smoking prevention?; Black (North) | Symposium | HLfL; Patient Speaker: Manuela Leonardi (IT) |
| 10.09.2017 | 10:45-12:45 | Nursing practice across respiratory care pathways; Blue 2 (North) | Poster discussion | -- |
| 10.09.2017 | 10:45-12:45 | The importance of physical activity in patients with COPD; Brown 3 (South) | Oral presentation | -- |
| 10.09.2017 | 10:45-12:45 | Paediatric asthma: treatment modalities and behavioural issues; Blue 1 (North) | Poster discussion | -- |
| 10.09.2017 | 12:50-14:40 | Primary care pulmonary rehabilitation, multimorbidity and organisation of care; TP-17 (Hall 4) | Thematic poster | -- |
| 10.09.2017 | 14:45-16:45 | Digital health: transforming the respiratory landscape; Beige (South) | Symposium | -- |
| 11.09.2017 | 08:30-10:30 | Air travel for respiratory patients; Beige (South) | Symposium | ELF Symposium; Patient speaker: Matthew Rutter (UK) |
| 11.09.2017 | 09:00-10:30 | Patient involvement in medical projects; Green 2 (North) | Professional development workshop | ELF workshop; Patient speakers: Marta Almagro (ES) and Joan Jordan (IE) |
| 11.09.2017 | 10:45-12:45 | Home ventilation in COPD; Purple (North) | Symposium | Patient speaker: TBC |
| 11.09.2017 | 10:45-12:45 | IPF: Clinical problems; Space 1 + 2 (South) | Oral presentation | -- |
| 11.09.2017 | 13:00-14:00 | Best abstracts in the Management of Chronic Respiratory Diseases; Amber 1 + 2 (South) | Poster discussion | -- |
| 11.09.2017 | 10:45-12:45 | Talking about smoking cessation with respiratory patients; Amber 1 + 2 (South) | Patient forum | HLfL; Patient Speaker / Chair: Isabel Saraiva (PT) & Stefania Vallone (IT) |
| 11.09.2017 | 14:45-16:45 | Primary care management of asthma and COPD; Space 3 + 4 (South) | Oral presentation | -- |
| 12.09.2017 | 08:30-10:30 | End-of-Life care of the respiratory patients; Bronze (Hall 4) | Hot topic | Patient speaker: TBC |
| 12.09.2017 | 08:30-10:30 | Delivering person-centred care across the spectrum of respiratory nursing; Brown 3 (South) | Oral presentation | -- |
| 12.09.2017 | 10:45-12:45 | Cystic fibrosis in children and adults: treatment dilemmas; Silver (North) | Symposium | Patient speaker: Zoe Elliott (UK) |
| 12.09.2017 | 10:45-12:45 | Assessing functional status in patients with COPD; Space 1 + 2 (South) | Oral presentation | -- |
| 12.09.2017 | 14:45-16:45 | Effects of air pollution on asthma and COPD; Black (North) | Symposium | HLfL; Patient speaker: Simone Francia (IT) |
| 12.09.2017 | 14:45-16:45 | How to manage difficult tuberculosis cases: diagnosis and treatment; Silver (North) | Symposium | -- |
| 12.09.2017 | 14:45-16:45 | Lancet Commission on asthma; Purple (North) | Session | -- |
| 13.09.2017 | 08:30-10:30 | ERS in the frontline to fight Tuberculosis; Auditorium (South) | Hot topic | -- |
| 13.09.2017 | 08:30-10:30 | New trends in pulmonary rehabilitation and chronic care; Yellow (North) | Oral presentation | -- |
| 13.09.2017 | 10:45-12:45 | Innovation in diagnosing and monitoring respiratory disease; Beige (South) | Symposium | Patient speaker: Annette Brons (NL) |
| 13.09.2017 | 10:45-12:45 | Idiopathic Pulmonary Fibrosis: from bench to bedside; Amber 1 + 2 (South) | Poster discussion | Patient speaker: Nicola Cassidy (IE) |
Healthy Lungs for Life in science and educational sessions
Please note that Congress registration is required to access scientific and educational sessions. An additional fee is required to attend postgraduate courses and professional development workshops. More details on registration for courses and workshops can be found here.
|
Date |
Time |
Session title and location |
Session type |
HLfL theme & Patient role |
| 09.09.2017 | 14:00-17:30 | Smoking cessation in patients with respiratory diseases; Turquoise 1 (North) | Postgraduate course | HLfL; Patient speaker: David Candlish (UK) |
| 10.09.2017 | 08:30-10:30 | Asthma and ACOS; predictors and clinical characteristics; Brown 3 (South) | Oral presentation | HLfL |
| 10.09.2017 | 08:30-10:30 | Shared exposures related to interstitial disease and airflow obstruction; Blue 2 (North) | Poster discussion | HLfL |
| 10.09.2017 | 08:30-10:30 | Tobacco Control in Europe: research and policy; Beige (South) | Symposium | HLfL |
| 10.09.2017 | 10:45-12:45 | Translating "evidence-based behaviour change" and "e-health" interventions into practice: what works in smoking cessation and smoking prevention?; Black (North) | Symposium | HLfL; Patient Speaker: Manuela Leonardi (IT) |
| 10.09.2017 | 10:45-12:45 | Determinants of childhood asthma and atopy; Brown 1 + 2 (South) | Oral presentation | HLfL |
| 10.09.2017 | 10:45-12:45 | Silicosis has not gone away; Space 3 + 4 (South) | Oral presentation | HLfL |
| 10.09.2017 | 12:50-14:40 | Latest insights in Functional Capacity, Muscle Weakness and Physical Activity in Chronic Lung Diseases; TP-08 (Hall 4) | Thematic poster | HLfL |
| 10.09.2017 | 12:50-14:40 | Best abstracts in Pulmonary Rehabilitation in Chronic Lung Diseases; TP-07 (Hall 4) | Thematic poster | HLfL |
| 10.09.2017 | 12:50-14:40 | Passive smoking and epidemiology Thematic poster; TP-33 (Hall 4) | HLfL | |
| 10.09.2017 | 12:50-14:40 | Smoking cessation; TP-34 (Hall 4) | Thematic poster | HLfL |
| 10.09.2017 | 12:50-14:40 | Lung function, respiratory symptoms and obstructive sleep apnea; TP-29 (Hall 4) | Thematic poster | HLfL |
| 10.09.2017 | 12:50-14:40 | Case reports and series; TP-31 (Hall 4) | Thematic poster | HLfL |
| 10.09.2017 | 12:50-14:40 | Smoking, apnea, infection, allergens, and other factors; TP-32 (Hall 4) | Thematic poster | HLfL |
| 10.09.2017 | 14:30-16:50 | Motivational interviewing for smoking cessation; Green 2 (North) | Professional development workshop | HLfL |
| 10.09.2017 | 14:45-16:45 | Prevalence, prognosis and comorbidities in COPD, and factors associated with lung function; Amber 7 + 8 (South) | Poster discussion | HLfL |
| 11.09.2017 | 08:30-10:30 | Tobacco prevention and cessation; Red (North) | Hot topic | HLfL |
| 11.09.2017 | 08:30-10:30 | Primary ciliary dyskinesia and air pollution; Amber 7 + 8 (South) | Poster discussion | HLfL |
| 11.09.2017 | 08:30-10:30 | The air indoors; Brown 1 + 2 (South) | Oral presentation | HLfL |
| 11.09.2017 | 10:45-12:45 | ERS Publications: 2017 ERS Guidelines and Task Forces; Beige (South) | Session | HLfL |
| 11.09.2017 | 10:45-12:45 | Occupational and Environmental Lung Disease; Gold (South) | Grand round | HLfL |
| 11.09.2017 | 10:45-12:45 | Electronic Nicotine Delivery Systems (ENDS); Brown 1 + 2 (South) | Oral presentation | HLfL |
| 11.09.2017 | 13:00-14:00 | Talking about smoking cessation with respiratory patients; Amber 1 + 2 (South) | Patient forum | HLfL; Patient Speaker / Chair: Isabel Saraiva (PT) & Stefania Vallone (IT) |
| 11.09.2017 | 14:45-16:45 | Smoking and health hazards; Amber 5 + 6 (South) | Poster discussion | HLfL |
| 12.09.2017 | 14:45-16:45 | Effects of air pollution on asthma and COPD; Black (North) | Symposium | HLfL; Patient Speaker: Annette Brons (NL) |
| 12.09.2017 | 14:45-16:45 | Factors associated with lung function development; Pink (South) | Oral presentation | HLfL |
| 12.09.2017 | 14:45-16:45 | Smoking cessation treatment / e-cigarette; Amber 5 + 6 (South) | Poster discussion | HLfL |
| 13.09.2017 | 08:30-10:30 | Chemical and biological indoor and outdoor pollution; Black (North) | Hot topic | HLfL |
| 13.09.2017 | 08:30-10:30 | Asthma: clinical and epidemiologic characterisation; Blue 2 (North) | Poster discussion | HLfL |
| 13.09.2017 | 10:45-12:45 | Smoking and molecular findings; Red (North) | Oral presentation | HLfL |
Public events (open to all)
|
Date |
Time |
Event |
Venue |
| 08.09.2017 | 10:00-18:00 | Healthy Lungs for Life – public lung testing and activities to raise awareness of smoking cessation and lung health | Via Beltrami / Piazza Castello, Milan |
| 09.09.2017 | 10:00-18:00 | Healthy Lungs for Life – public lung testing and activities to raise awareness of smoking cessation and lung health | Via Beltrami / Piazza Castello, Milan |
| 11.09.2017 | 18:30-20:20 | Meet the Expert (in Italian): opportunity for patients and the public to hear from experts in lung health | Sala Conferenze, 4 piano, Palazzo Reale. Piazza del Duomo, 12, Milan |
Patient organisation presentations
- learn more about the role of patient organisations in supporting patients and their families
- hear about specific activities and campaigns
- ask questions and meet patient organisations in your country or area of disease interest
Meetings (invitation only)
|
Date |
Time |
Meeting |
| 10.09.2017 | 13:00-14:30 | ELF Patient Advisory Committee |
| 12.09.2017 | 10:30-12:00 | ELF International Patient Advisory Committee |
| Throughout Congress | N/A | ERS Task Force and Clinical Research Collaboration meetings with ELF and patient input |
| Throughout Congress | N/A | EU-funded project meetings |
For further information on any of these meetings or events, please contact Courtney Coleman, ELF Patient involvement and engagement or visit the ELF and patient organisation stand in the World Village during Congress.
Courtney would also be happy to arrange to meet with any Congress delegates interested in working with ELF to involve patients in an ERS Task Force, Clinical Research Collaboration (CRC) or EU project.